This afternoon I saw
a pituitary specialist from UCLA Medical Center. After 10 years of
struggling with chronic illness I was desperate to find out why I have
been having such a hard time. Although I received a diagnosis of
pituitary failure in 2001, I've always felt that something was being
missed. It seemed like no matter how hard I tried to follow my doctors
directions I could never get the illness under control. But today I
finally feel like I know why...
After reviewing my
records he came to the conclusion that I never really had pituitary
failure to begin with! The MRI that was taken of my pituitary gland in
2001 did not show any damage. He said that it was almost impossible for
me to have pituitary failure under such conditions. Apparently, the
symptoms that I had that seemed to indicate pituitary failure were
caused by the steroid medications I began taking for my asthma and
allergies in 1996. In some cases, such medications will temporarily
suppress the production of hormones such as testosterone and cortisol.
If a hormone level test is done during that time a doctor might
conclude that a patient has pituitary failure. But it's simply a
misdiagnosis to conclude that when the pituitary gland is obviously
normal.
However, once a
patient starts taking the hormones to treat a supposed pituitary
problem, the body will stop producing such hormones and in effect will
develop an artificially induced pituitary failure condition.
Apparently, that is what happened to me. So in a nutshell, this never
should have happened... And the tough part about it is that it's not
necessarily reversible. Over a period of months or years I may be able
to undo the condition by withdrawing from the medications, but that is
uncertain. Sometimes, by gradually lowering the dosages the body will
resume producing those hormones on its own.
I gotta tell ya
gang, I'm stunned... I was in tears after I left the doctor's office...
All these years of fighting illness on a daily basis and it never
should have happened... However, I feel so relieved to finally
understand what is going on. The specialist supported my current
strategy of addressing the complicating factors of sinus and
respiratory infections by getting allergy shots and felt that that was
my best bet to help manage my condition. We decided that I should began
a slow withdrawal process from the hormone medications over the next
several months and see what happens. He warned me that it will be a
rough process and that I will feel quite sick at times. He also advised
that I do no intense exercise, because that will tend to cause
setbacks. And he said it is critical that I have minimal stress in my
life...
As you can imagine,
I'm sitting here in my Hollywood hotel room tonight all wound up... I doubt if
I'll be able to sleep much but don't get me wrong I actually feel quite
jazzed! At least I know what I'm dealing with now. It was very
validating to hear this doctor tell me what I suspected was true for a
long, long time. He told me he's never met a person with my condition
that has gone through so much that is so positive. He said that most
people have no idea what I've had to deal with and that I must be one
heck of a trooper to have hung in there all these years. When I told
them that I doubted that I would be able to return to the computer
profession, he concurred and suggested I just stick to writing my book.
He said he was amazed at how much of this I had figured out on my own.
He then shook my hand and called me Dr. Jim...
So I've got a lot on
my mind...and my heart... Despite all the uncertainty I still feel more
confident than I have in a while. I don't know what will happen in the
future. All I know right now, is next Monday I WILL start my next
Body-for-Life challenge...
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